Category: Giant Cell Tumor

Postoperative Neuropathy

Postoperative Neuropathy – I has it.  There’s a large roving dead spot of no feeling in my lower leg since the surgery.  surrounding it, and radiating out, are patches of hypersensitivity.  Anything against these patches, even something as thin as a bed sheet, feels like rubbing sandpaper over a freshly skinned knee.  It makes wearing pants, and long johns (kind of a necessity here right now) annoying, and it makes sleep nearly impossible.

It seems to be the worst at night.  Right now I estimate I’m getting 2 hours or less of sleep at each go before waking up.  Sometimes it’s the knee waking me up, as I can easily irritate it changing positions in my sleep, but most often it’s this nerve pain.  Once awake it’s difficult to go back to sleep.  On a typical night I’m in bed by 9, but not asleep until midnight or later.  Then I’m waking up at least once around 2. If I’m able to fall back asleep I reawaken around 4.  Usually that’s it for me, and I just get up.  This morning, for the first time, I was able to fall back asleep around 4:30 and my alarm woke me at my usual 5:30 time.

I’m trying different methods to combat all this.  I’ve had chamomile tea and taken valerian and other supposedly sleep inducing herbs.  I’m loathe to take a prescription drug, as I’m finally off of the ridiculous number I was on post-op.  Last night I tried  a compression sock over the leg, thinking that maybe having something on it that isn’t moving around causing irritation might help.  It seemed to, at least a little, though this morning my foot hurts.  I may have to cut the toe out of one of the compression socks and see if that helps.

It’s all very frustrating, as it’s severely effecting my focus, attention and motivation during the day.  I’m not only constantly in varying levels of pain, I’m also always tired.

There’s no doubt that they cut through some nerves during the procedure.  They also moved some around – out of the way – during it.  There’s also still plenty of inflammation going on.  My hope is that this will all improve over time.

Giant Cell Tumor

It all began with an achy left knee. It ached for years, really. Then, summer before last, I took a healthy spill while mountain biking and hit it but good on some partially buried lava rocks. After that it really was never the same, and I assumed that I’d done some sort of ligament damage to it.

By November of 2017 it was troublesome enough to keep me from playing soccer with my son. Kicking the ball, especially on the inside of my foot, would set off an advanced ache that would last for days. It was at this point that my wife insisted I have it looked at. I told the ortho that I was sure I’d damaged some ligaments. An x-ray was performed. Much to my surprise my ligaments looked fine. What was concerning was a definite large lump of bone in the top of my tibia. The doctor said it could be a tumor. An MRI was performed. My wife said those damned doctors always go for the worst case scenario, so surely it wasn’t a tumor.

The following week the doctor was running late for my return appointment to discuss the MRI. Very late. Rather than reschedule me, they shuffled me into an examination room to wait in private. About a half hour later, when the doctor still hadn’t arrived and the nurses were continuing to check in on me and assure me I should wait, I knew it had to be a tumor. They wouldn’t keep me for anything they weren’t concerned about.

When the doc finally swept in the room I said, in my most Ahnuld accent, “It’s a toomah!” He didn’t crack a smile. Instead, he rolled the computer monitor my way and presented this:

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