GCT – Giant Cell Tumor – 3 Months Post-Op
Today marks 3 months post op on my tumor. Random musings follow.
- I found some GCT support groups on Facebook, but I’m somewhat loathe to recommend them. Just as when I found support groups for SIBO (another condition I have), I worry that the their memberships are skewed toward more complicated/difficult situations. This only makes sense, as people who are experiencing protracted complications are far more apt to seek out support communities then are those who’ve had a relatively trouble free experience. Reading frustrating story after frustrating story can be frightening and, frankly, a bit demoralizing. I think it’s important to remember whenever joining a group like this that a significant percentage of its population seem to be having a hard time doesn’t necessarily translate into a significant percentage of everyone who has had this condition having a hard time. Some people get a GCT, get surgery, get better, and move on. Success stories don’t often join a support group. They don’t need it. Meanwhile, members of the support group post things like this:Presumably because their experience has been such that, to some degree, their GCT defines them. This is not a criticism – I totally understand. However, personally I’m not interested in letting the negative aspects of my life define it.